Patient-Centered Tools to Improve Life with Heart Disease

 
 
 
Development of a personalized and interactive web-based care innovation to enhance the quality of life and care of patients with heart disease implanted with an ICD

Background20140428_hjertesvigt

The incidence of heart failure is rising, with more than 26 million affected annually in Europe and the United States. Heart failure is a complex, chronic condition, with many of these patients being implanted with an implantable cardioverter defibrillator (ICD) to prevent sudden cardiac death. The disorder causes disability, depression, and reduced quality of life, and the risk of hospitalisation and mortality is high.

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Starting point and goal 

The overall aim of the project is to develop and evaluate the clinical and economic impact of a web-based, interactive care innovation that allows patients to routinely monitor their health status and symptoms of anxiety and depression and detect deterioration at an early stage. Via the platform patients will be able to engage in a dialogue with health care professionals, enabling action plans to be set up that are supported with hands-on advice and tools provided via the platform or app geared to life with a chronic disease and a device. Patients will also have the possibility of engaging with other patients via the platform.

 

Patient@home will especially be involved in designing, building and supporting the web-based, interactive platform, and be involved in the research team.

 

The project will make use of mixed-methods, including focus groups and multi-disciplinary expert panels that will also include the end users, to develop and implement the platform. The effectiveness of the platform will ultimately be tested using a randomized controlled trial design.

 

Expected results

We expect that the care innovation will enhance patients' health status and quality of life, increase their satisfaction with treatment, reduce hospitalizations, facilitate communication between patients and the health care professionals about patients' treatment in a shared-decision making process, and overall enable patients to live a better life with their disease and their device.

 

The project is funded with a grant from TrygFonden and the Lundbeck Foundation, and a seeding grant from patient@home.

 

Read more HERE.

 
Contact PersonSusanne 
                Schmidt Pedersen

Susanne  Schmidt Pedersen

Professor of Cardiac Psychology


Syddansk Universitet, Institut for Psykologi

Email:  LOADEMAIL[sspedersen]DOMAIN[health.sdu.dk]

Tel:      +45 6550 7992

Partners

Syddansk Universitet, Institut for Psykologi

Susanne  Schmidt Pedersen

Email:  LOADEMAIL[sspedersen]DOMAIN[health.sdu.dk]

Tel:      +45 6550 7992

Web:   http://www.sdu.dk/om_sdu/institutter_centre/institut_psykologi

Syddansk Universitet, Center for Anvendt Sundhedstjenesteforskning og Teknologivurdering

Jan  Sørensen

Email:  LOADEMAIL[jas]DOMAIN[sdu.dk]

Tel:      +45 6550 3090

Web:   http://www.sdu.dk/om_sdu/institutter_centre/ccohere

Nordsjællands Hospital

Morten  Schou

Email:  LOADEMAIL[m.schou]DOMAIN[dadlnet.dk]

Tel:      40523920

Web:   www.nordsjaellandshospital.dk

Saint Luke's Mid America Heart Institute

John  Spertus

Email:  LOADEMAIL[spertusj]DOMAIN[umkc.edu]

Tel:      +1 816 932 8270

Web:   http://www.saintlukeshealthsystem.org/services/heart-and-vascular-cardiovascular-services

Odense Universitetshospital - Hjertemedicinsk Afdeling

Jens Brock  Johansen

Email:  LOADEMAIL[jens.brock.johansen]DOMAIN[rsyd.dk]

Tel:      +45 2681 8248

Web:   www.ouh.dk

Syddansk Universitet, Mærsk Mc-Kinney Møller Instituttet

Uffe  Kock Wiil

Email:  LOADEMAIL[ukwiil]DOMAIN[mmmi.sdu.dk]

Tel:      +45 6011 3565

Web:   http://www.sdu.dk/Om_SDU/Institutter_centre/Mmmi_maersk_mckinney_moeller

UMKC School of Medicine - Biomedical & Health Informatics

Kim G.  Smolderen

Email:  LOADEMAIL[smolderenk]DOMAIN[umkc.edu]

Tel:      816 932 5846

Web:   http://med.umkc.edu/dbhi/

Odense Universitetshospital

Claus  Duedal Pedersen

Email:  LOADEMAIL[Claus.Duedal.Pedersen]DOMAIN[rsyd.dk]

Tel:      +45 2115 3578

Web:   http://www.ouh.dk

Aarhus Universitetshospital - Hjertemedicinsk afdeling

Jens Cosedis  Nielsen

Email:  LOADEMAIL[jens.cosedis.nielsen]DOMAIN[clin.au.dk]

Tel:      +45 7845 2039

Web:   http://auh.dk/om-auh/afdelinger/hjertesygdomme/

Aalborg Universitetshospital - Kardiologisk Afdeling

Sam  Riahi

Email:  LOADEMAIL[sar]DOMAIN[rn.dk]

Tel:      +45 9766 1214

Web:   http://www.aalborguh.rn.dk/afsnit-og-ambulatorier/kardiologisk-afdeling

Syddansk Universitet, Forskningsenheden for Almen Praksis

Carl  Brandt

Email:  LOADEMAIL[cbrandt]DOMAIN[health.sdu.dk]

Tel:      +45 6550 3834

Web:   http://www.sdu.dk/om_sdu/institutter_centre/ist_sundhedstjenesteforsk/forskning/forskningsenheder/almenpraksis

Liva Healthcare ApS

Kristoffer  From

Email:  LOADEMAIL[info]DOMAIN[livalife.com]

Tel:      +45 2645 4378

Web:   http://livalife.com/

Odense Patient data Explorative Network

Lars  Søgaard

Email:  LOADEMAIL[lars.soegaard]DOMAIN[rsyd.dk]

Tel:      +45 4021 8457

Web:   http://www.sdu.dk/om_sdu/institutter_centre/klinisk_institut/forskning/forskningsenheder/open

Syddansk Universitet - Forskningsenheden for Brugerperspektiver

Helle  Johannessen

Email:  LOADEMAIL[hjohannessen]DOMAIN[health.sdu.dk]

Tel:      +45 6550 3647

Web:   http://www.sdu.dk/om_sdu/institutter_centre/ist_sundhedstjenesteforsk/forskning/forskningsenheder/brugerperspektiver

Region Sjælland, Kvalitet og Udvikling - Sund

Anne Dalhof  Pedersen

Email:  LOADEMAIL[adap]DOMAIN[regionsjaelland.dk]

Tel:      +45 5787 5200

Web:   http://regionsjaelland.dk/omregionen/Organisation/oevrigeafdelingerogenheder/Sider/kvalitet-og-udvikling.aspx